Our Friends

We couldn't do this journey alone and there are lots of fellow PWS warriors fighting the good fight.

Take a peek below and visit some of our friends!

Prader-Willi Association

PWS USA is a wonderful organization committed to supporting families and educating them.

Support Groups

If you are in the Connecticut area, contact us to find our our next caregiver support group!

Prader-Willi Families United

Meet my partners in crime! 

TREND Community

TREND Community is an online community of patients and caregivers living with rare disease who are sharing stories & data. Join the citizen scientists in the PWS Community who are actively participating in the search for effective treatments, diets, and other interventions.