Our Friends

We couldn't do this journey alone and there are lots of fellow PWS warriors fighting the good fight.

Take a peek below and visit some of our friends!

Prader-Willi Association

PWS USA is a wonderful organization committed to supporting families and educating them.

Support Groups

If you are in the Connecticut area, contact us to find our our next caregiver support group!

Prader-Willi Families United

Meet my partners in crime! 

TREND Community

TREND Community is an online community of patients and caregivers living with rare disease who are sharing stories & data. Join the citizen scientists in the PWS Community who are actively participating in the search for effective treatments, diets, and other interventions.

The Mac Pact


PO Box 605

Durham, CT 06422

The Mac Pact is a nonprofit, tax-exempt charitable status under 501(c)(3) of the Internal Revenue Code. Donations are tax-deductible as allowed by law

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